Lewy Body Dementia, or LBD, includes Parkinson's Disease Dementia and Dementia with Lewy Bodies. LBD is the second most common neurocognitive disorder.

LBD causes many different symptoms leading to difficulties with diagnosis and management, and significant caregiver strain and stress. Certain symptoms cause many people with LBD to visit the emergency room or the hospital each year, and some people are placed in skilled nursing facilities or nursing homes. In many cases, these visits and placements might be preventable.

Our team of LBD experts have been working on innovative programs to help people living with LBD and their caregivers. One such program includes helping caregivers directly through education and peer mentoring.

In our first study of peer mentoring for caregivers of people with advanced Parkinson's Disease, caregivers were matched with a peer mentor. Mentors were caregivers with many years of experience caring for their loved one with Parkinson's Disease or a related condition, who had then gone through mentor training with our team. Caregivers and their mentors had weekly calls to learn from each other, receive support, and share challenges and accomplishments in their caregiving journey. Both caregivers and mentors found this program helpful.

Now, we are reaching out to you as we launch the next phase of caregiver education and peer mentoring in LBD.

Please complete the survey below to help us understand if this intervention might be of interest to you.

The survey will take about 10 minutes to complete. We hope that you will do your best to answer all the questions, as it is helpful to have the most complete survey possible. However, if you do not wish to answer a question, you may skip it and continue. The risks to participation are fatigue, frustration, or discomfort with any of the questions. You may stop at any time or alternatively, you may choose not to participate. Your participation is completely voluntary. It will not affect your care or your participation in outreach activities. You will not be compensated for your time, nor will you be charged. All of your answers will remain confidential and will be stored in a password-protected database. We will not identify you or use any information that would make it possible for anyone to identify you.

If you have any questions about the survey, you may contact Dr. Fleisher's research team at (312) 563-2900.

By clicking the button below to take the survey, you indicate that:

1) You have read the above information

2) You voluntarily agree to participate

Thank you so much for your participation.

Sincerely,

Jori Fleisher, MD MSCE

Associate Professor of Neurological Sciences

Rush University Medical Center

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